Pediatric Spina Bifida Program
Multidisciplinary Care for Children with Spina Bifida
Your child deserves a chance to take on the world. You don’t need to let anything hold him or her back, even a condition like spina bifida. Our team of healthcare professionals is here to help your child progress to their fullest potential.
Orlando Health Children's Neuroscience Institute Spina Bifida Program, supported by the Leon Pediatric Neuroscience Fund, has been caring for infants and children with spina bifida since 1981. Through collaborative care, our multidisciplinary team is dedicated to providing your child with optimal health and the best possible quality of life.
Spina bifida is a neural tube defect that occurs during the first month of pregnancy. As the fetus develops, the spinal cord is not able to fully form, causing a sac of spinal fluid, tissue and spinal cord to form outside of the body. Before or after birth, doctors perform surgery to correct the spinal defect.
Post-surgical symptoms of spina bifida can vary greatly from child to child. Although some children may experience minimal impacts, others may face challenges with walking and mobility, bowel and bladder function, wound healing or fluid accumulating in the brain (hydrocephalus) requiring shunt surgery. For these reasons, lifelong care is especially important for a child with spina bifida.
A Spina Bifida Association Clinic Care Partner
Orlando Health Children's Neuroscience Institute Spina Bifida Program, supported by the Leon Pediatric Neuroscience Fund is the first program in Florida and one of only 31 worldwide to be recognized as a Spina Bifida Association (SBA) Clinic Care Partner. The SBA program works to understand the needs of individuals with spina bifida and identify clinics with the best outcomes. Clinics who become SBA Clinic Care Partners are recognized for meeting 10 standards of care identified as best practices to care for people with spina bifida.
Multidisciplinary Clinic
Children with spina bifida may require care from a variety of specialists, including those representing neurosurgery, urology, orthopedics, physical therapy, occupational therapy and speech therapy. Each Friday, we offer a specialized Spina Bifida Clinic where patients up to age 18 can be evaluated and treated by experts who come together to treat the multiple needs of spina bifida patients. Our diverse team of experts includes specialists from the following departments at Orlando Health Arnold Palmer:
Pediatric Gastroenterology
Pediatric Neurosurgery
Pediatric Orthopedics
Pediatric Rehabilitation Program
Pediatric Physical Medicine & Rehabilitation
Pediatric Pulmonary and Sleep Medicine
Pediatric Urology
Fetal Care Center
After the clinic, the team meets to discuss each patient and set goals for the next six to 12 months. Between appointments, our dedicated nurse coordinators stay in touch with patients and their families to guide patients’ care plans. These elements make the care received in our pediatric Spina Bifida Clinic some of the best and most personal care available for patients with this complex condition.
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